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Already crossing off goals for 2025!
Don't be alarmed, we're just already halfway through January... I always get so pumped up at the start of the year while making...
Latest Blog Post:
Hi, Brittany (Damian's Mom) here! Damian's story is being told across multiple platforms in an attempt to reach the largest audience. I post a lot of content on these other platforms and it is all very shareable!! Please join our community on whichever platforms you're on to help us spread the word! THANK YOU!
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brittanymarkham
Nov 6, 20235 min read
THE RESULTS of Damian's Not-So-Haunted House!
Happy November everyone! What an absolute whirlwind the last two months have been creating and opening and operating our latest crazy...
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brittanymarkham
Sep 14, 20233 min read
Make your own "Not-So-Haunted" stretching portrait!
Our "not-so-haunted" house designs are well on their way and I am so excited to share the progress!! In my last blog post I shared all...
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brittanymarkham
Sep 3, 20235 min read
OUR NEXT BIG PROJECT!!!
Buckle up and keep your hands, arms, feet and legs inside the vehicle! This next month and a half is going to be a wild ride. I can't...
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brittanymarkham
Aug 29, 20239 min read
Treatment Update: Brain 2.0 & MORE
Phew, what a busy (and exciting) summer it's been! With so many fundraising events going on, from the 4th of July parade to the Taylor...
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brittanymarkham
Aug 15, 202312 min read
TAYLOR SWIFT WEEK: How it went!!!
Oh my goodness, what a WEEK!!! In the off-chance you haven't heard about the absolute mania we've been in for the past month preparing to...
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brittanymarkham
Jul 20, 20234 min read
Our next project: Taylor Swift! (help wanted)
I can't believe I'm writing this: I am going to the Eras Tour. EEEEEEEK!!!! A few weeks ago, I got the **surprise of the summer** when I...
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brittanymarkham
Jul 16, 20238 min read
Damian is vegan now
I usually end my posts with a disclaimer, but in this case I am going to start my post with one: As a reminder, I am not a doctor. I do...
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brittanymarkham
Jun 16, 20232 min read
Sneak Peak at our Parade Concept!
If you were around last year, you may remember we participated in our city's annual Independence Day parade! For our float, I made a huge...
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brittanymarkham
May 14, 20234 min read
"You're Doing a Great Job, Mama"
Moms, let's all be honest - isn't motherhood the hardest thing we've ever done? I come from a family of 9 children and when I asked my...
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brittanymarkham
Apr 3, 20238 min read
Damian just got a feeding tube
I'm sooooooo glad we were discharged on a Friday and had the weekend where we could just—well—I was going to say recharge, but honestly,...
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brittanymarkham
Mar 19, 20238 min read
One Step Closer to a Feeding Tube
A little backstory: Damian's liver and spleen are about 10x the normal size due to his disease (ASMD) and have been squishing Damian's...
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brittanymarkham
Mar 4, 20235 min read
WE DID IT!!!! WE REACHED $1 MILLION!!!
EEEEEEEEEEK! We've been trying to reach $1 million in funds raised for our campaign for a long while and I knew we could finally do it by...
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brittanymarkham
Feb 28, 20233 min read
We are about to hit $1 MILLION!!!!
Happy Rare Disease Day INDEED!!!! We had a goal this month to finally hit $1 million in total fundraising for our campaign and we very...
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brittanymarkham
Feb 1, 20237 min read
9 Months on the "Brain 1.0" Treatment!
Here is our official report on Damian's skills, abilities, and any other observable differences now that he's been on the experimental...
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brittanymarkham
Jan 11, 20234 min read
My abstract ambition for 2023
For several years I have set time aside to come up with New Year's resolutions, but I've noticed that I'm much more successful and feel...
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brittanymarkham
Jan 3, 20235 min read
Happy New Year from the Markham Family!
Our Annual Family Newsletter of 2022 Events Happy New Year, everyone! I just reread our annual family newsletter from last year and I am...
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brittanymarkham
Dec 28, 20228 min read
We started ERT!!!! And then went to the ER...
Not exactly how we envisioned Christmas panning out this weekend. But let's take it from the top: We had our start date for Enzyme...
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brittanymarkham
Dec 19, 20227 min read
Praying hard for our Christmas wish!
Who would've thought we'd have more issues with starting Enzyme Replacement Therapy after I sent an infuriated email to the CEO of...
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brittanymarkham
Nov 22, 20223 min read
How to help #SaveDamian during the holidays!
Thanksgiving is this week! And Christmas is next month! EEEK, can you believe it?? The fact is: there has never been a better time, nor...
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brittanymarkham
Nov 14, 20229 min read
The 3 Treatments for ASMD (& why Damian needs them)
This past week we gave Damian his 100th dose of his first-ever experimental treatment for ASMD and I could not be more grateful!!!...
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