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Already crossing off goals for 2025!
Don't be alarmed, we're just already halfway through January... I always get so pumped up at the start of the year while making...
Latest Blog Post:
Hi, Brittany (Damian's Mom) here! Damian's story is being told across multiple platforms in an attempt to reach the largest audience. I post a lot of content on these other platforms and it is all very shareable!! Please join our community on whichever platforms you're on to help us spread the word! THANK YOU!
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brittanymarkham
Nov 7, 20225 min read
Is the end of the ERT drama in sight???
Hope you all had a fabulous Halloween (it was ONLY a week ago, can you believe it? So pardon me, but I'll be posting some fall photos...
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brittanymarkham
Aug 29, 20225 min read
Damian's BACK in therapy!
You might remember (or not!) that earlier this year I was having an emotional time in the days leading up to Damian's 3rd birthday (it...
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brittanymarkham
Aug 12, 202210 min read
I'm furious... What. HAPPENED?!?!
August 1st was going to be such a BIG day. I was very nervous: starting a new treatment meant taking the risk of dealing with an allergic...
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brittanymarkham
Jul 27, 20225 min read
3 Months on the Treatment & Starting PHASE 2!!!
Here is our official report on Damian's skills, abilities, and any other observable differences now that he's been on the experimental...
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brittanymarkham
Jul 23, 20226 min read
Damian and I are "Influencers" now??
Damian and I have been attending every big gathering and city event we can possibly go to to help spread our story. And I am humbled to...
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brittanymarkham
Jun 17, 20223 min read
Damian is going to be in a PARADE!!!
You didn't think that just because we didn't make our million dollar milestone by May 24th we were going to give up fundraising, did...
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brittanymarkham
May 31, 20226 min read
1 MONTH on the treatment: my report :)
As of May 22nd, 2022, Damian has officially been taking the first of the experimental treatments we've been able to access for ONE WHOLE...
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brittanymarkham
May 16, 20225 min read
8 doses in... is the treatment working yet???
WOW, it is great to be on the other side of the treatment approvals!!!! As of Friday, Damian has taken the experimental treatment 8 times...
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brittanymarkham
May 8, 20223 min read
A Mother's Day Message from Brock
Written by Brock Markham (Damian's Dad) I wasn't home with Brittany and Damian when she got the call of Damian's diagnosis in March of...
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brittanymarkham
Apr 21, 20225 min read
The FDA approved our treatment!!! WE START TOMORROW!!!
I CANNOT TELL YOU HOW EXCITED I AM!!!!! I COULD SCREAM!!!! IN FACT, I WILL!!!! AAAAAAAHHHHHHHHHHHH!!!!!!!! You all know how long we have...
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brittanymarkham
Mar 31, 20228 min read
How to Share Damian's Story Online
What a BLESSING it is that I am getting asked so often right now about how to best share Damian's story online!! Thank you all so so much...
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brittanymarkham
Mar 20, 20227 min read
"Mama Bear Brittany" came out this week... A LOT
For weeks and weeks I had been planning my next blog update: "FINALLY we have a start date," "ANNOUNCING: The news we've all been waiting...
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brittanymarkham
Feb 1, 202210 min read
Scheduling Surgeries & The Challenge of Endurance
Damian and I had a loooong week of emotionally draining appointments and conversations this past week. I think what made it especially...
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brittanymarkham
Jan 16, 20225 min read
Damian doesn't wave anymore
Every skill that Damian loses due to ASMD is devastating, but anyone following our story for some time will appreciate how particularly...
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brittanymarkham
Jan 1, 20228 min read
Happy New Year from the Markham Family!
Our Annual Family Newsletter of 2021 Events For the past few years, this blog has only served the purpose of hosting our annual...
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brittanymarkham
Nov 15, 20217 min read
"How Can I Help?"
I am SO GRATEFUL to every single person who has asked me this question!! You are all so wonderful!! We are incredibly blessed to be a...
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brittanymarkham
Nov 7, 20219 min read
IT'S A MIRACLE! WE HAVE MADE CONTACT!
Who knew there were such things as Halloween miracles??? For those of you who don't watch our weekly "Story Time with Damian" Instagram...
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brittanymarkham
Oct 3, 20217 min read
Damian is Getting Weaker
I've attempted this blog post a few different times over the past month but it felt so weird to talk about Damian's regression when so...
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brittanymarkham
Aug 4, 20217 min read
Damian's 1st Specialized Chair & Why We LOVE Therapy
Damian's first physical therapy session this week started off with a big surprise! A couple weeks ago, an equipment vendor representative...
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brittanymarkham
Jul 12, 20216 min read
Our NYC Trip!
We'd anticipated this trip since the week we got Damian's diagnosis. First of all, I want to make it very clear that not one penny of...
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